The House of Doo

The House of Doo

Tuesday, October 29, 2013

Life Right Now.

It has been about 3 1/2 weeks since my last update and a lot has happened.  It always seems that way.  Never a dull moment around here, that's for sure. 

First of all, yesterday was Colt's third birthday!  On one hand, I am stunned that it has been three years since he was born.  On the other, BOY, have we been through a lot in those three years.  Wow.  Colt is a stubborn, determined, brilliant, and loving little boy.  We are so very blessed to have him in our lives.  On Saturday, we had a big party for him at my dad and Judy's house.  We had a hayride and fire, with chili, hot dogs, and s'mores.  I think everyone had a good time.  I know we did. 

Yesterday, Ryan took the day off and we took Colt for a big day out.  We started with his yearly check-up.  He weighed in at a whopping 43 lbs and was 40 1/2 inches tall.  He used to be a chunky little man, but now, he's thinned up a lot as he's gotten taller.  He is still solid as a rock.  I love that...until I have to carry him up the stairs.  ;)  Anyway, after the doctor, we went to the Tennessee Aquarium and out for pizza at Mellow Mushroom.  We went home for a nap, then back out for dinner at Shogun.  Colt loves that place.  He loves the salad with ginger dressing and the hibachi vegetables.  After dinner, we went to Petco and bought Colt his very own fish to have in his room at home.  He named them Gil and Molly, after his new favorite show Bubble Guppies.  We had a wonderful day together.  :)

Okay, now for some of the updates.  Colt aged out of our Early Intervention program - Babies Can't Wait.  The program only services children ages three and under.  He should have, without a doubt, qualified for the Special Education Pre-K that I have mentioned before.  HOWEVER, he didn't.  It was VERY, VERY upsetting because he should have qualified.  It left me feeling helpless and I shed many tears over that situation.  Basically, they told me that his cognitive ability was too high.  I know that is a huge blessing, really I do.  I was depending on that for help though, and when it was denied, I was devastated.  They did give Colt an IEP for speech therapy through the school system, but nothing more.  He will begin speech therapy at Cherokee Ridge Elementary tomorrow and will go twice a week from now on.  They suggested we continue Physical Therapy through a private therapist on our own, with our own money.  Gee, thanks.  Let me describe this meeting for you...  There was a big round table with me and five others - two speech therapists, an occupational therapist, a special education teacher, and a school psychologist.  I had to sit there for an hour and twenty minutes listening to them analyze every single part of my son - what he couldn't do, wouldn't do, shouldn't do, and the few things he did well.  It was one of the hardest things I have ever had to endure.  I wanted to jump up and defend him, but obviously, I can't do that.  I sat through all of that before they told me he didn't qualify.  Ugh. 

One big thing they did talk to me about is the fact that they all unanimously agreed that Colt has Sensory Processing Disorder.  Many times, it can be misdiagnosed as ADHD or it can occur along with ADHD.  Our old speech therapist, Ashley, mentioned that she thought he may be ADHD before, however, he was too young to really say.  When I came back and did a little research, I honestly think they are right.  He definitely doesn't fit all of the different types, but I do feel that he is very "Sensory-Seeking."  I listed some below so you kind of know what I mean.

1. Sensory Seeking Behaviors:

_X_ seeks out jumping, bumping, and crashing activities

__ stomps feet when walking

_X_ kicks his/her feet on floor or chair while sitting at desk/table

__ bites or sucks on fingers and/or frequently cracks his/her knuckles

_X_ loves to be tightly wrapped in many or weighted blankets, especially at bedtime

__ prefers clothes (and belts, hoods, shoelaces) to be as tight as possible

_X_ loves/seeks out "squishing" activities

_X_ enjoys bear hugs

_X_ excessive banging on/with toys and objects

_X_ loves "roughhousing" and tackling/wrestling games

_X_ frequently falls on floor intentionally

__ would jump on a trampoline for hours on end

__ grinds his/her teeth throughout the day

_X_ loves pushing/pulling/dragging objects

_X_ loves jumping off furniture or from high places

_X_ frequently hits, bumps or pushes other children  (This is what he got in trouble for at school!)

_X_ chews on pens, straws, shirt sleeves etc.  (shirt collar!)

_X_high levels of energy

_X_ dumping toy bins rummaging through them aimlessly

_X_ loves loud noises, TV or music volume, crowds and places with lots of action (Football games!)

I definitely think we are heading in the right direction here, but I am afraid to pursue a diagnosis.  I am not ready for a label at this age, but I do want to try to help him before it gets bad, if this is indeed what's going on.  I think, without a doubt, it is more than just a "typical boy, he'll grow out of it" thing.  Maybe we can just look into things we can try to do at home to help, so if anyone has any suggestions, I am all ears.

Anyway, all of this left us with no plan for preschool or places for social interaction, aside from your usual playground/playdate type thing.  A friend of my sister, Amie, suggested we look into Siskin Children's Institute.  It is a really amazing place.  There is almost always a waiting list, but this time, there is an opening in Colt's age class.  We toured it last week and loved everything about it.  It has happened so easily and so quickly that we are wondering if this isn't where he's supposed to be anyway.  We are pursuing this hard and hope to be able to start him there in the next week or two.  I couldn't be happier.

Also, Colt has had yet another double ear infection/sinus infection.  He is on antibiotics for the third time in 6 weeks.  We saw his ENT again recently.  He decided to do a second set of tubes and to take his adenoids out.  That will be done next week, November 6.  I feel like we have done nothing but go to different doctors or therapists this month.  This is my calendar for the month:
I am tired of it, I know that Colt must be too.  Hopefully things will settle down soon.  I'll leave you with a few pictures from his birthday party/big day out. :)

 Colt's new friends - Gil and Molly.
 At the Butterfly Garden.
 Birthday boy!

 Colt driving around his lady friends. ;)
 Happy birthday, Colt!!


  1. Jessica, you are such an incredible advocate for your son! He is so very, very lucky to have you as his mother. Unfortunately I have never been lucky enough to meet Colt in person, but I am so enchanted by the stories and photos you post of his huge personality.

    In one of life's many coincidences, a friend of mine, Mamie, who used to work with me at BCBST very recently posted that she was leaving her full-time job to work with a local company that really inspired her. I don't know a lot about it, but it's called SensaCalm ( and it specializes in products to help kids with sensory disorders. You should see if they have anything that might benefit your little man!

    1. Audrey, thank you so much for this information! I will look into that company! Also, thank you for your kind words. I love to share Colt with others, I feel like he has so much to give!

  2. By the way, the last comment was from Audrey Blackwell Eady, but I forgot to sign it! : )