We just got home from the neurologist's office. It was a long afternoon. Dr. Miller didn't really tell us anything that he hasn't already told us. We still have a long way to go.
Dr. Miller didn't talk much about Colt's lack of speech and what we can expect because he is much more concerned about a bigger problem, one that may be hindering Colt's ability to speak and who knows what else. As desperately as I want to hear Colt speak, I can live with no words if he is otherwise healthy.
Dr. Miller said there are two "boats" Colt could be in. The first boat is that this situation is as bad as it will get and from here, we learn to deal with the hand Colt has been dealt. The second boat is that this could get worse...that this could be a degenerative disease of some sort. The problem is that, right now, Dr. Miller does not know what boat Colt is in. I am going to be completely honest when I say that scares the mess out of me. I want that first boat with a passion.
The doctor said Colt has it hard in the fact that what is wrong is not terribly obvious. That sounds weird, but if there is an obvious part of his brain that is messed up or even missing, you pretty much know what will happen. When it isn't as obvious in the damage department, it makes it much harder to figure out exactly what is wrong, what it will affect, and that makes it harder on Colt because he has to go through a lot more testing to figure it out. All we can do now is trust God and trust doctors. I am probably the least trusting person ever. I am guarded and skeptical. This will be a challenge.
Our poor boy...Nystagmus, strabismus, 8 ear infections, asthma, bronchitis, sinus infections, allergy testing, orthopedists, two MRIs being put to sleep, ear tubes, three eye surgeries, seeing specialists two plane rides away, more doctor visits than I could ever count, and now add in a neurologist... He has been through so much in less than two years, yet he is such a delightful, happy, beautiful, brilliant, sweet child. I am supposed to be teaching him about life, but instead, he's teaching me. And trusting me. I am in awe of him. I truly am.
Dr. Miller didn't talk much about Colt's lack of speech and what we can expect because he is much more concerned about a bigger problem, one that may be hindering Colt's ability to speak and who knows what else. As desperately as I want to hear Colt speak, I can live with no words if he is otherwise healthy.
Dr. Miller said there are two "boats" Colt could be in. The first boat is that this situation is as bad as it will get and from here, we learn to deal with the hand Colt has been dealt. The second boat is that this could get worse...that this could be a degenerative disease of some sort. The problem is that, right now, Dr. Miller does not know what boat Colt is in. I am going to be completely honest when I say that scares the mess out of me. I want that first boat with a passion.
The doctor said Colt has it hard in the fact that what is wrong is not terribly obvious. That sounds weird, but if there is an obvious part of his brain that is messed up or even missing, you pretty much know what will happen. When it isn't as obvious in the damage department, it makes it much harder to figure out exactly what is wrong, what it will affect, and that makes it harder on Colt because he has to go through a lot more testing to figure it out. All we can do now is trust God and trust doctors. I am probably the least trusting person ever. I am guarded and skeptical. This will be a challenge.
Our poor boy...Nystagmus, strabismus, 8 ear infections, asthma, bronchitis, sinus infections, allergy testing, orthopedists, two MRIs being put to sleep, ear tubes, three eye surgeries, seeing specialists two plane rides away, more doctor visits than I could ever count, and now add in a neurologist... He has been through so much in less than two years, yet he is such a delightful, happy, beautiful, brilliant, sweet child. I am supposed to be teaching him about life, but instead, he's teaching me. And trusting me. I am in awe of him. I truly am.
We prayed for you guys tonight with the boys (as we do many nights)! When we mention Colt and his mommy and daddy in our prayer requests Cooper always smiles, we've got to do a play date soon! If you and Ryan ever need a night to yourselves to get a break from it all just let us know, we'd love to have Colt over to play if he'd stay! If not, we should all get together and do something soon since the weather is finally looking up! We miss you guys!
ReplyDeleteCassidy, we've got to quit saying it and actually do it! :) Thank you for your prayers, I do appreciate them. They really mean a lot.
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